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People with dementia are still people, with joys and interests of their own | Letters

‘What an interesting and profound piece about the hidden thoughts and perceptions of people with dementia.’ we Umstaetter/Alamy‘What an interesting and profound piece about the hidden thoughts and perceptions of people with dementia.’ we Umstaetter/AlamyLettersPeople with dementia are still people, with joys and interests of their ownReaders respond to an article by Jo Glanville about reading to her parents with dementia, and offer their own insights about supporting loved ones with the diseaseWell said, Jo Glanville (Reading was the key to breaking through the fog of my parents’ dementia, 1 February). Our mother lived with vascular dementia for many years, but she wasn’t “dead” or “as good as dead”. Far too many people believe this, even people whose loved ones have had dementia, and it’s a dangerous belief that undermines the rights of people who are already extremely vulnerable. Mum was alive and herself right to the end, even when she had become bedbound and crippled, even when somebody who could once have chatted for England barely spoke any more.

People with dementia are still people, with joys and interests of their own | Letters

Credit: Theguardian

Key Highlights

  • But in those last few years, when she could no longer read for herself, Dad or I (or my brothers when they visited) read to her every day, and even when she didn’t say much, I could tell by the expression on her face whether she was enjoying it or not. We read to her even in her last four days after she’d been taken to hospital when she’d choked (vascular dementia can cause dysphagia, trouble with swallowing as well as speech) and had a heart attack, and never spoke again, and even then we could still tell what she was enjoying and what she wasn’t. In the hospital, as we had done at home, we even managed to play her some music, even though the overworked but wonderful hospital staff couldn’t get a separate room for her.
  • And once the staff had got her painkilling medication right, she stayed peaceful right to the end.
  • People with dementia are still people, and they deserve to be treated as people, not as some kind of zombies. Rowan AdamsDilwyn, Herefordshire Jo Glanville’s insights on her parent’s enduring love of stories deep into dementia truly resonated.
  • After his 2017 Alzheimer’s and vascular dementia diagnosis, Dad’s lifelong love of reading seemingly ceased.
  • Instead of accepting it, I thought it would make a difference to change the format rather than the activity.
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Sources

  1. People with dementia are still people, with joys and interests of their own | Letters

This quick summary is automatically generated using AI based on reports from multiple news sources. The content has not been reviewed or verified by humans. For complete details, accuracy, and context, please refer to the original published articles.

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