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Health

Where patients live matters for access to gene therapy

Health Where patients live matters for access to gene therapy February 24, 202610:00 AM ET By Sydney Lupkin Gene therapies are out of reach for many who need them to beat diseases Listen · 4:47 4:47 Transcript Toggle more options Download Embed Embed <iframe src="https://www. npr. org/player/embed/nx-s1-5723768/nx-s1-9630707" width="100%" height="290" frameborder="0" scrolling="no" title="NPR embedded audio player"> Transcript Dustin Vidrine stands outside his house in Lafayette, La. Annie Flanagan for NPR hide caption toggle caption Annie Flanagan for NPR Dustin Vidrine's sight is disappearing — shrinking, really. He has retinitis pigmentosa, a rare, inherited eye disease that runs in his family.

Where patients live matters for access to gene therapy

Credit: Dustin Vidrine stands outside his house in Lafayette, La.Annie Flanagan for NPRhide captiontoggle captionAnnie Flanagan for NPR

Key Highlights

  • By the time he was in his 20s, he noticed that his vision had narrowed.
  • It was especially apparent when he was looking at a computer or TV.
  • "The bigger the screen, the harder it was to see because I'm only seeing one portion of detail at a time," says Dustin, 34, of Lafayette, La.
  • "I would have to read like one letter at a time, whether I'm zooming in or not." Then Vidrine had kids.
  • Fatherhood brought new challenges.
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Sources

  1. Where patients live matters for access to gene therapy

This quick summary is automatically generated using AI based on reports from multiple news sources. The content has not been reviewed or verified by humans. For complete details, accuracy, and context, please refer to the original published articles.

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